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NYT

How One Woman With a Very Rare Disease Secured a Clinical Trial

Monday, August 17, 2026


Neena Nizar enrolled in a clinical trial testing a treatment for a disease affecting approximately 30 people worldwide. The trial represents the first clinical testing of the treatment for the condition. Nizar's enrollment was announced following her pursuit of participation in the study.

Original reporting: https://www.nytimes.com/2026/08/17/science/clinical-trial-jansens-disease-nizar-nih.html

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